Some scary @#$%

Metabolic disorders are taking our babies! I have often said that an extra check mark on a lab requisition at the first hospital I took Deklan to may have saved him a world of sickness, maybe even his life, but now that I am at home at the keyboard of my computer, my googling confirms it. It makes me feel absolutely sick to my stomach. Deklan's disorder was a particularly rare and nasty one, but there are a myriad of other manageable metabolic conditions killing babies. The key is EARLY detection and management. Many of these conditions can be detected before a baby even becomes symptomatic. With metabolic babies even a cold or flu can send their bodies into crisis. When Deklan was set to come home we had to have a very strict protocol in place as to exactly what steps need to be taken should he turn up in an ER.

I can easily see this becoming a life's work for me. I would give anything to have my little sweetheart back but that's just not possible. The next best thing would be to spare another mother this kind of gut wrenching loss.

http://www.savebabiescanada.org/